The Staab family has two of their three children affected by this disease. They started the Tyler's Hope foundation to raise awareness for families dealing with the effects of dystonia. They have been working for a year organizing today's open discussion summit. The main goal of this meeting was to get ideas for doctors to take back to their labs. The Staabs are ready to take whatever steps are necessary to see this doesn't happen to another family.

By: Brittany Soeder, WCJB TV20 News